Rheumatology

Okay, done with patients for the day. Heading to my rheumatology appointment, and then doing something I haven’t been able to do in years: going to read some books in a cafe :-)

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Tonight is a high pain night. Thankful my first meeting is in the late morning, and then I just have my rheumatologist appointment, coffee with a friend, and one patient. It will be a slow day tomorrow #RA #RheumatoidArthritis #Myositis https://t.co/3d3MTIq02w

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For those new: Hi! I’m queer & disabled. Beyond LD & Dyslexia, I have ADHD/TS/OCD/Depression/Anxiety, and Rheumatoid Arthritis & Myositis. I am a very much a member of the Disabled community. When I speak it is only of, and from my own experiences. YMMV.

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Neurological/Rheumatological Fuckery

So quick medical update: I’m in a flareup again (like, not quite acute…but reaaaaaaaly close…like if acute is a 10, I’m at a 9.7). Walking is exceedingly difficult, muscle/pain weakness are making me ambulate like a toddler (but I have Zappy the Wonder Walker, for which I’m extraordinarily grateful).
 
My PCP & Neurologist both think there’s more to the diagnosis than Fibromyalgia, so my Neurologist is writing a letter to the Mayo asking for another consultation when I go back there in August for the Fibromyalgia Clinic.
 
However, thanks to adaptive technology (my Rollator Zappy, and voice-to-text software) I am still a happy (if uncomfortable) camper. Added bonus though: when orientation tour groups gawk, you get to tell them that you’re part of an anti-aging study being conducted on campus, and that things are going great, they just haven’t figured out the walking part yet.