How many people had to die for the order of succession to… 21:24:15, 2017-07-08
She wouldn’t stop chirping until I massaged her #cat #cats #tortoiseshell #tortitude #catsofinstagram #instacat #instalikes #kitty #kitties #catdad #mycat #mycatAkiva #nosuchthingastoomanyhashtags
Just finished up at the Neurologiats office. They don’t think this is just Fibromyalgia for a lot of reasons. Chief among them are that many of my symptoms are far beyond the scope of Fibromyalgia. Also, whenever I’m in a flare up/excessive pain, my CK levels are elevated indicating some kind of muscle issue (“It’s not all in your head!”). ”
My doctor was also like “and when you were there you were on high doses of Prednisone” and I reminded them that “Yes, and I was also on two months of resting because I was on disability…” (and I’ve been saying the “hey, I was on high doses of steroids” thing for weeks now.
Anyway my neurologist is writing a letter to the Mayo explaining his thoughts and observations, and asking them to take another look. He believes, like my primary care physician and I do, that we’re missing a part of this diagnosis and that the Fibromyalgia is comorbid with something.
Back to the Mayo Clinic we go…and if they won’t give us an appointment, to Johns Hopkins.
Rejoined Weight Watchers. It’s the only program that’s worked for me (I once got down to 170lbs) – I stopped during my bankruptcy just because, life…but my doctor, GI, Neuro, PT have all been like “you. need. to. lose. weight” each for a different reason, and so it’s now on the same priority level as my Neurologist or Rheumatologist or any of the other -ologists I see these days.
Also, I plan on being around for nieces, nephews, and godchildren so, there’s that too.
So I did 10 minutes at 3.2/mph, at a 9 incline at Planet Fitness this morning: now to see if the flareups are regular and repeatable…if I’m miserable tomorrow we’ve actually made progress because we learned something. If I’m not miserable we’ve also made progress #ForScience
moocowinthecity
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