moocow in the city

one cow. many pastures.

June 2017

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@universityatbuffalo remembers the victims of the #pulseorlando attack with our flag and colors at half-mast today. One of the most incredible things about #UB is that even when it’s summer session, or students are on break #UBRemembers and ensures that our school, our colors, our flag stands with our brothers and sisters #Pulse #Orlando #UBPride #universityatbuffalo

@universityatbuffalo remembers the victims of the #pulseorlando attack with our flag and colors at half-mast today. One of the most incredible things about #UB is that even when it's summer session, or students are on break #UBRemembers and ensures that our school, our colors, our flag stands with our brothers and sisters #Pulse #Orlando #UBPride #universityatbuffalo

@universityatbuffalo remembers the victims of the #pulseorlando attack with our flag and colors at half-mast today. One of the most incredible things about #UB is that even when it’s summer session, or students are on break #UBRemembers and ensures that our school, our colors, our flag stands with our brothers and sisters #Pulse #Orlando #UBPride #universityatbuffalo

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Neurology

So it’s not so much that I don’t have superpowers anymore….

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…it’s just that those superpowers are morphing, and changing into something different, something slower, perhaps something more empathic, and narrowly defined.

Having gone from sleeping 3 hours (maybe) a night and infinite energy…to Fibromyalgia, and no energy, and pain, and trouble ambulating, and needing to sleep all the time, and feeling fatigued all the time, and having Fibrofog (instead of constantly being clear headed)…it’s very much like loosing a super power…that said, for some things there’s coping skills (like writing things down, keeping a very well detailed calendar, keeping the house neat and organized so I don’t need to spend energy on it, and keeping my bag organized so I always know where things are instead of having to try and find them, etc.)

But with that said, It’s frustrating, it’s aggravating, sometimes it’s maddening. It causes me to have to re-arrange (cognitively) all of my previously understood abilities…and even things like planning to read chapters for class takes more time, and can be thrown off by the whims and flotsam and jetsam of my neurology.

I am coping, I am getting through…but I am also very new to this new piece of my self mosaic, and it is going to take quite sometime to integrate it into my idea of self.

 

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Sleep all day, work some of the night

So I slept all day (with minor breaks to get up and use the facilities, shove food in my mouth, take pills, and make a Skype call). I could easily go back to bed now. This isn’t fibro fatigue though, I don’t think. I am relatively sure this is just my usual reaction to antibiotics which for some reason usually make me tired. But if this somehow handles the IBS it’s worth it.

Anyway, going to do dishes, finish (I hope unpacking and organizing/cleaning the lady of my home office), do the one grad school assignment that has to get done this weekend (an introduction/about myself post) so I can watch the lectures on for addictions and the family tomorrow, so I can greet Monday mostly non-grumpy like.

Part of my long term/dealing with this shit strategy is super vigilance on keeping my house clean and organized, because if it’s done constantly as I go, and it’s never a thing I have to do as one big chore, that’s just one more spoon I get to save for something else.

From a mobility standpoint of course it makes things easier too. This isn’t to say the place had been a wreck, we’ve just been in the throes of unpacking for the past several months and now it *has* to get done.

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And the sewing room is done! #sewing #sew #youareyourownmeansofproduction #vocation #vocationaltraining #fashion #design #fashiondesign #garment #garmentconstruction #fabric #fabriccutting #patterns #makerspaces #sewingroom #sewingstudio #whybuywhenyoucanmake #apartment #apartmentliving #apartmenttherapy

And the sewing room is done! #sewing #sew #youareyourownmeansofproduction #vocation #vocationaltraining #fashion #design #fashiondesign #garment #garmentconstruction #fabric #fabriccutting #patterns #makerspaces #sewingroom #sewingstudio #whybuywhenyoucanmake #apartment #apartmentliving #apartmenttherapy

And the sewing room is done! #sewing #sew #youareyourownmeansofproduction #vocation #vocationaltraining #fashion #design #fashiondesign #garment #garmentconstruction #fabric #fabriccutting #patterns #makerspaces #sewingroom #sewingstudio #whybuywhenyoucanmake #apartment #apartmentliving #apartmenttherapy

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I have pretty good insurance, but it still requires prior approval and weeks of waiting for an antibiotic I needed to treat IBS (Xifaxan). Remove the middlemen, shift healthcare to a national priority and create a #SinglePayerNow, understanding the health of the individual is the health of the nation and we all do better when we look after not only ourselves but our neighbors.

I have pretty good insurance, but it still requires prior approval and weeks of waiting for an antibiotic I needed to treat IBS (Xifaxan). Remove the middlemen, shift healthcare to a national priority and create a #SinglePayerNow, understanding the health of the individual is the health of the nation and we all do better when we look after not only ourselves but our neighbors.

I have pretty good insurance, but it still requires prior approval and weeks of waiting for an antibiotic I needed to treat IBS (Xifaxan). Remove the middlemen, shift healthcare to a national priority and create a #SinglePayerNow, understanding the health of the individual is the health of the nation and we all do better when we look after not only ourselves but our neighbors.

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